All Family Resources
All Clinician Resources

Parent Ambassadors for Cure JM’s Giving Tuesday Holiday Challenge

Your Participation Means a Lot to Our Success

We are pleased to recognize our Parent Ambassadors for Cure JM’s Giving Tuesday Holiday Challenge.  The Parent Ambassadors have stepped into a leadership role to help make the biggest day of the year a huge success for our kids.

We are so grateful to all our ambassadors and everyone participating in Giving Tuesday. When we all work together, we can move mountains for our kids.

Interested in learning more about being a parent ambassador?  Please contact Shannon.Malloy@curejm.org.

Leah & P.J. Kania, Parent Chairs, Giving Tuesday
Becca & Jim Tighe, Parent Chairs, Giving Tuesday

Patron Sponsor

Marge Coffey

Giving Tuesday Parent Ambassadors

Cassie Austin

Bobbie & Matt Bernhardt

Michelle Best

Amy & Jeff Blitz

Cristal Brinker

Leslie Budnick

Maggie Choy

Christy Coss, M.D.

Debbie Daum

Jessica Doherty

Rebecca Gengler

Julie Golob

Lindsey Harris

Anna Heidenreich

Jerrica & Alvin Hightower

Rebecca Karsten

Mike Kenawell

Karen Kovacs

Jessica Kovacs

Lindsay & Matthew Llauget

Dave Maher

Colleen Marchetta

Rachel Newman

Erin & Mike Parnell

Jason Phelps

Tiffany Pringle

Anahi Renteria

Laura Robbins

Glen Westrom

Ashley Whitt

Kara Wysocki

Sydney’s Story

Spring break should be about fun and relaxation. Sandi and her husband Zack expected their trip to Mexico would be the same. Of course, taking

Affordable and Accessible Treatments for JM

Affordable and Accessible Treatments for JM

Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.

The FDA’s Ruling on Vamorolone in DMD

You may have heard about yesterday’s FDA ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.

Vamorolone is a new steroid alternative with fewer side effects than prednisone. The drug aims to preserve the beneficial anti-inflammatory and muscle-strengthening characteristics of corticosteroids, while decreasing some of the unwelcome side effects, including bone fragility, delayed growth, and behavior changes.

As we learned in yesterday’s announcement, vamorolone was found to be both safe and effective as a therapy for Duchenne muscular dystrophy in its newly approved indication.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Join Now
Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.